and started a Pulmonary Embolism support forum.
Let's see what happens next.
Thursday, January 27, 2011
Wednesday, January 26, 2011
Monday, January 24, 2011
Valentines
Her name is Clare. She's thirteen years old and has a cancer so rare, the odds of getting it are one in three million.
Thanks to an existing and loving friendship between my sister and one of the teachers at Clare's dance studio, my sister's dance company and our studio are collecting valentines for this little fighter. We want valentines and notes and pictures and good wishes from as many places as we can get them.
Please help us out--
Valentines for Clare
Dance Project
932-H Meramec Station Road
Valley Park, MO 63088
Thanks to an existing and loving friendship between my sister and one of the teachers at Clare's dance studio, my sister's dance company and our studio are collecting valentines for this little fighter. We want valentines and notes and pictures and good wishes from as many places as we can get them.
Please help us out--
Valentines for Clare
Dance Project
932-H Meramec Station Road
Valley Park, MO 63088
Saturday, January 22, 2011
Sing it
Far Away--live performance at the Spike VGAs.
Jose Gonzalez is my new musical addiction, as is the Red Dead Redemption OST. It's fascinating the places you can find good music. My sister did a piece to a song from Battlestar Galactica--it's beautiful and powerful and so frakking cool.
We're probably the only dance studio in the area to use a non-traditional boys' choir and music from an anime' series. I love my job.
Jose Gonzalez is my new musical addiction, as is the Red Dead Redemption OST. It's fascinating the places you can find good music. My sister did a piece to a song from Battlestar Galactica--it's beautiful and powerful and so frakking cool.
We're probably the only dance studio in the area to use a non-traditional boys' choir and music from an anime' series. I love my job.
Tuesday, January 18, 2011
Monday, January 17, 2011
Blergh
It's winter. It's cold. It makes my scar hurt. Do not want.
I love being back at work, though. It makes being back on the Coumadin a little more tolerable--that and knowing this is only a 3-month go. The worst part about last year was not knowing when I'd be off that stuff. Now I know and I hope that this time, it sticks. If I calculate the timeline correctly, that puts me getting completely cleared around the one-year anniversary of my initial collapse. If I end up a lifer, so be it. At least now I know what to expect.
I still feel a bit lost, I guess because I was gone for so long. Thankfully I'm surrounded by people who understand how it feels. Two of my students have been invaluable in helping me talk this through because they've been through major surgery and understand how your brain can bend when it comes to the healing process.
My vascular surgeon's office called last week to let me know that everything was pretty well healed, blood was flowing as it should through the IVC. Am working up to stretching, dancing more--rebuilt my sister's website for her dance company from the ground up (thanks for the lessons, Fahnz) and beat "Scott Pilgrim: The Game" last night. Life feels almost normal.
Stuff I want to do:
A dance to "Far Away" from the Red Dead Redemption OST. That song is flawless.
Drop 20 pounds.
Sleep.
I love being alive.
I love being back at work, though. It makes being back on the Coumadin a little more tolerable--that and knowing this is only a 3-month go. The worst part about last year was not knowing when I'd be off that stuff. Now I know and I hope that this time, it sticks. If I calculate the timeline correctly, that puts me getting completely cleared around the one-year anniversary of my initial collapse. If I end up a lifer, so be it. At least now I know what to expect.
I still feel a bit lost, I guess because I was gone for so long. Thankfully I'm surrounded by people who understand how it feels. Two of my students have been invaluable in helping me talk this through because they've been through major surgery and understand how your brain can bend when it comes to the healing process.
My vascular surgeon's office called last week to let me know that everything was pretty well healed, blood was flowing as it should through the IVC. Am working up to stretching, dancing more--rebuilt my sister's website for her dance company from the ground up (thanks for the lessons, Fahnz) and beat "Scott Pilgrim: The Game" last night. Life feels almost normal.
Stuff I want to do:
A dance to "Far Away" from the Red Dead Redemption OST. That song is flawless.
Drop 20 pounds.
Sleep.
I love being alive.
Tuesday, January 4, 2011
Back to it
No running marathons, no heavy lifting--but I get to go back to the studio today! YAY!!
It's really been difficult, being out of work. I've read up on post-surgical depression and it's given me a lot more clarity about why I'm so miserable. I'm unproductive, couldn't get out and go for walks or exercise properly, felt useless no matter how much housework I did. Hopefully that ends today. Plus I get to start a dance--Mum picked out some KILLER music for the recital this year and it looks like we're starting way early.
The nice part is, the day of my return is the day that the kids who were there the first time I went down are the kids I'm teaching. Seems like they're the ones who get to see me through all of this--my one-year PE anniversary is on a Tuesday this year.
Also today I am getting my blood drawn for another d-dimer, the test that determines if there is the potential for reclotting. I had an ultrasound on my stomach to see how my IVC is healing and the tech checked my leg while I was there. No new growth, which is wonderful because I've been off Coumadin for a month. Fingers crossed--I want that tattoo.
Got some insane boots for Christmas but I gotta get a bigger size. So after my blood draw I am off to *gulp* MACY'S, which hopefully won't be too bad because it's daytime. THEN I'm off to Powder Valley for a nice calm walk. Apparently after abdominal surgery of any kind your tum can be puffy for months. Do not want. Been popping antacids over the past few days and it really does help.
So here we go. I have a fresh haircut, new dye job, and a less than 5% chance of going back on meds. Life starts again today.
It's really been difficult, being out of work. I've read up on post-surgical depression and it's given me a lot more clarity about why I'm so miserable. I'm unproductive, couldn't get out and go for walks or exercise properly, felt useless no matter how much housework I did. Hopefully that ends today. Plus I get to start a dance--Mum picked out some KILLER music for the recital this year and it looks like we're starting way early.
The nice part is, the day of my return is the day that the kids who were there the first time I went down are the kids I'm teaching. Seems like they're the ones who get to see me through all of this--my one-year PE anniversary is on a Tuesday this year.
Also today I am getting my blood drawn for another d-dimer, the test that determines if there is the potential for reclotting. I had an ultrasound on my stomach to see how my IVC is healing and the tech checked my leg while I was there. No new growth, which is wonderful because I've been off Coumadin for a month. Fingers crossed--I want that tattoo.
Got some insane boots for Christmas but I gotta get a bigger size. So after my blood draw I am off to *gulp* MACY'S, which hopefully won't be too bad because it's daytime. THEN I'm off to Powder Valley for a nice calm walk. Apparently after abdominal surgery of any kind your tum can be puffy for months. Do not want. Been popping antacids over the past few days and it really does help.
So here we go. I have a fresh haircut, new dye job, and a less than 5% chance of going back on meds. Life starts again today.
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