Thursday, February 17, 2011

MEK At some point during the week

Hey, what did you think of Inception?











Yeah.
I'll get back to you once you've got it all sorted out.

Wednesday, February 9, 2011

Clare Update

We've got valentines EVERYWHERE. Her neighbor comes to our studio and has already taken three bags home with her.

A little more about Clare for those of you who are interested in sending something but aren't quite sure what to get:

1. Her favorite colors are blue and purple, according to her dance teacher.
2. She's starting to lose her hair so it's headscarf time!
3. Chocolate, Twizzlers, goldfish crackers, you name it and she's probably had a snacky craving for it.
4. Cute cards, funny cards, pretty cards, we don't care as long as it's appropriate for a thirteen-year-old girl and full of positive energy, good wishes, and love.

Valentines for Clare
Dance Project
932-H Meramec Station Road
Valley Park, MO 63088.

We've got stuff from Germany, Denmark, stuff coming from England and Japan--all over the United States and all over the world. If it gets here after Valentine's Day we'll make sure she gets it. Thank you for being part of our effort.

If you want to see how she's getting on, her CaringBridge is here.

Frak!

The INR is a shiny little number that measures the ratio of blood clotting time in a patient on anticoagulation therapy to the blood clotting time of norms. In a regular human it's about 1.0 to 1.5. In us zombie types, they try for 2.5 to 3.5.

Went in for my draw yesterday and it was 1.6. NOT happy. Then I had to go get a Lovenox injection right that damn minute at the emergency room of the hospital I was in when I had the embolism, where I've been getting treated ever since. This was in the middle of class. REALLY not happy. Luckily for me the hospital is right down the road.

Off I go to the ER. The nursing supervisor is to give me the injection and once again I have good luck because he's given me injections before and he has been on anticoag so he knows exactly how miserable a person can get on this stuff. Right side's off limits, here's the scar (I think he was impressed, especially after I explained the filter thing) so let's do this.

Short needles still make me twitchy. Lovenox is an anticoag that can only be administered in the lower abdomen. It's a 140 mg dose so I only have to do this once a day, thank goodness. Shot delivered and waiting and THERE'S the burn. It's like someone lit a match under your skin. I sit and wait for the burn to subside. Can't rub it no matter how bad it hurts. And then I did something that piled on even more not happy.

I went back to class. I taught Jazz, or tried to. Mostly I just sat in the chair doubled over trying to not show how much agony I was in and how badly I wanted to throw up. Two more days of this stuff. Can't wait.

MEK Whenever

Not sure who won, but rest assured the battle was epic.

Monday, February 7, 2011

Why the new look?


Because March is coming. March is DVT Awareness Month. Burgundy is the DVT Awareness color. Never thought I'd be into that sort of thing, but then it happened. Ehnk.

We now return you to your regularly scheduled flopathon.

Sunday, February 6, 2011

Case Study

One of our former students is going to school for Physical Therapy and wants to specialize in dancers. She's been hanging at the studio a lot, taking class and observing, and it's really lovely to have her back in our lives!

She informed me that one of her classes required a case study on an infectious disease/natural disorder. Would I help out if it was on clotting disorders? YES. Any chance I have to get the word out and help a friend is a good thing. So far she's had me answer a few questions and review a bit about the post-embolism experience as far as how much exercising I am able to do, all pretty straightforward stuff.

But now the big stuff happens. We've been trying to coordinate an interview over the past few days, even though Nature has had other, snowier plans. So we came to an agreement--I would record myself sharing my thoughts and feelings about my experience and put it on DVD for her to show her class. I think I'm a bit scared.

The problem is I haven't really gotten to talk to that many people about what happened to me and how it affects me emotionally, how overwhelmed I get about the whole almost-dying part of it and how sometimes I'm afraid that I've dwelled on it for too long. It's always been about my meds and how those effect me, am I tired, does my scar bother me much--the medical side of things is all I'm really able to discuss because when I'm around people I have to have the game face on. So I'm not afraid of talking about it from the patient perspective.

I am very concerned about keeping it together long enough to record this. It's so important to this girl that I share everything I can. The problem is I've got eight months worth of stuff that I haven't shared with anyone except Fahnz and I don't know what I will do if it overwhelms me. He'll be around while I record, thank goodness. I doubt I could do it alone, just like I don't think I could have survived if he wasn't in my life.

I am wearing a very meaningful t-shirt for this. I hope she notices.

Tuesday, February 1, 2011

MEK Tuesday

It's cold and snowy outside. Make sure you are bundled up accordingly. If possible, find someone to carry you around as demonstrated in the picture so your tender feet don't have to touch the ground.

Eh, it works for cats...